Pancreas Cancer Discussion Page:
An Unmoderated Forum
*
 
Support pancreas research*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER

Pancreas Cancer

Yes... was posted 10/24/2014 01:52 pm by Anonymous
E-mail Address:

Message Text
A PET scan is not very sensitive if the cancer is back and it is still very small. So while this result is somewhat reassuring, it still doesn't help you very much. I agree that this is a very stressful time.

I would agree with continuing to follow the markers closely, and rescan with CT (chest/abdomen/pelvis) at a 3-6 month interval and if ANY new symptom occurs.

What does the doctor suggest? Has he had PC patients with results like this in the past?

Depending upon what your doctor is like (aggressive.. conservative...) and what your mother wants, you could discuss what they have done for patients in the past when they suspect the cancer might be back but can't see it yet. There have been a couple posters on this site that started chemo again before the cancer was visible.

For example, you could ask... how about trying the pill form of 5-FU (Xeloda) for a few months. If the CA19-9 goes down, that may be a sign the cancer is back and you could continue the chemo. But if it doesn't go down, you can stop the chemo, as the CA19-9 is going up due to something else..... or the cancer is resistant to that chemo anyway so you might as well stop the chemo. The trouble is that it might be hard to get insurance to cover chemo used in this way.

As with anyone who has been through a fight with PC, use your time well. If there are things you haven't talked about with your Mom about what she wants in life, and to plan for the future, now is a good time to talk about these things while she is well. If she has a 'bucket list', I hope she is doing some of these things if she can afford to. But honestly, we all should be living life this way.... PC or not....

Reply to this message | Return to Main Message List


Responses

No replies on file.


*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


Pancreas Home | Surgical | Medical | Basic Sci | Docs | Registry | FAQ | Appts | Chat

Feedback | Pathology Home | Oncology Center Home | Search
Copyright © 2020 The Johns Hopkins University, Baltimore, Maryland
Last Modified: 11/11/2002 10:50 am