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Pancreas Cancer

Reply was posted 08/24/2014 09:36 am by Anonymous
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I was in a similar situation as you. I had a 1 cm nueroendocrine tumor located in the tail of my pancreas. My best friend was being treated for carcinoid by Dr. Kvols at Moffit and I went with him as his advocate, this is before I knew I had a neuroendocrine tumor myself. Dr. Kvols is a noted expert. After I was diagnosed with the tumor, I read a paper co-authored by Dr. Kovols called 'Aggressive Surgical Resection in the Management of Pancreatic Neuroendocrine Tumors: When Is It Indicated?'

My initial surgeon suggested surveillence. I took the time to educate myself regarding the results of my EUS with FNA (biopsy). I chose to seek surgical resection before my benign tumor became malignant. Pancreatic neuroendocrine tumors are considered benign only if they haven't metastisized. Nobody could guarantee me that it would metastisize so I decided to have it out before it could.

I was 42 when I had the surgery. I became insulin dependent after the surgery which I knew was a possibility. Dealing with insulin has been more of a challenge that I thought it would be but I manage. I have no regrets regarding my dedision. I made an informed decision that I could live with.

Best of luck with your decision.



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