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Pancreas Cancer

Seek advice/comments for mom ( was posted 04/28/2014 10:30 am by danny
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Dear all, I¡¯m writing here to solicit all advice or insight for my 71-old mom. Any suggestions are highly appreciated. Because we love her so much and can¡¯t afford losing her too soon. Our aim is to let her survive longer and live better.

My mom was healthy, energetic and diligent. 170cm or 5'7''. 65kg before ill. In August 2013, she was unfortunately found getting PC after losing weight of 4~5kg and feeling pain in her stomach.

* Size: 3.8x3.3x1.8cm at start
* Location: pancreas body
* CT/Pathological diagnosis: High-differentiated PC; inoperable
* Treatment: because she and us don¡¯t like to stay at hospital, we chose to join an Otsuka S-1 test. Take S-1 capsule for three courses (a test comparing to Gemzar): for every course: take capsules of 20mg x3x2 everyday for 4 weeks; and pause for 2~4 weeks.
Course 1: 2013-9-6 to 2013-10-4
Course 2: 2013-10-21 to 2013-11-18
Course 3: 2013-12-10 to 2014-1-16
* Current: No further chemotherapy because the course 1-3 was believed not effective by doctors. Tubercle found in peritoneum. Further weight loss to 55kg from 59kg. Take Acarbose & pancreatin.
* Pain: take Telenin 3~6 pills; from March, plus OxyContin
* Blood / WCB:
- date: CA19-9; CEA; RCR; CA72-4; WCB
- 7/02: 564; 4.14; -; -; -
- 9/03: 1,013; 6.15; >150; -; -
- 11/04: 700+; -; -; -; 3,700
- 12/09: 700+; -; -; -; 5,000
- 2/07: 817; 4.91; >150; 28.4;-
- 4/04: 1,578; -; -; -; -
*¡¡Other Syndrome: Anorexia ¨C poor appetite; depressed; constipation. Never with jaudice. At start pain extended to her back but now heavier pain in stomach. Nonetheless, still can take care of herself and walk outside.
Our questions:
a) We've heard of too many bad stories about chemotherapy, especially little effect on PC but with severe side effects. Shall we now reconsider first line treatment like Gemzar? Or should we keep the current hospice£¿Are there any patients that didn¡¯t take chemotherapy and what¡¯s their experience and survival length?
b) How could we get trial of vaccine at Johns Hopkins?
c) How could we let her fare more?
d) What else could we do?

Thank you in advance ¨C we really look forward to learning from doctors, patients and/or their families. Any comments or words highly appreciated. If you want to send us information in detail, I¡¯ll give my emails.

With love

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