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In the 3 months prior to diagnosis she had multiple CT with and without contrast, ERCP, MRI, EUS and aspiration of liver lesions (negative for cancer). Her CT-19 was in the mid 20s in the normal range and never really changed.
She was on TPN for 3 weeks prior to surgery. Doctors kept looking at the gallbladder (which had sludge) and the billary duct (stent put in). The only mention of the pancreas was pancreatitis and possible psuedocyst.
The surgeon (previously at JH)was the only one who suspected PC. However, he was seen several months later on consult since my sister kept getting worse.
During surgery he found a large mass on pancreas with 15-20 liver lesions and multiple lymph node involvement.
Looking back she had always had IBS for decades but her symptoms were different during the last year. I have stayed on this board for the last 5 years trying to educate myself but rarely responding. Your situation caused me to share her story. I don't recall many people who underwent so many tests without getting a diagnosis.
Hope this addresses some of your questions. Wishing you the best!
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