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Pancreas Cancer

Perfect! was posted 03/29/2013 01:48 pm by Anonymous
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Great plan. I'm happy to help by sharing our experience. The palliative care nurse is EXACTLY the right person to call. You are very lucky to have one!! Nice job in finding that person.

You are right... the chemo nurses and oncologist/oncology nurse are often too busy. But who cares if the chemo works if you feel like crap, and are tired and nauseated all the time? That's worth then death! So keep the palliative care nurse as your go-to person for the nausea, fatigue, sleep issues, depression/mood, appetite and just talking...

His energy is also low because he isn't eating, he is probably dehydrated, and the ativan/compazine will make him more tired. And certainly, the chemo and the disease push you down...

Once things get settled and his nausea medicines are better sorted out (minimizing anything that makes you tired...), start asking about the medicine ritalin or provigil (generic modafinil). These were my mom's 'pep pills' and really helped a lot.

Sorry for acting like a pill pusher... but I'm big on maximizing quality of life. Keep asking, keep pushing...

take care

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