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Pancreas Cancer

Partial update... was posted 09/28/2012 09:48 pm by Jo in KC
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Scan, 'relatively' stable, not much different, some ascites. CA19-9... up slightly, but under under 100. Anemia, worse, transfusions scheduled. Platelets, horible. Concerning, swelling in rt foot and ankle, probably a clot. ultrasound was done urgently... they carefully checked the calf, thigh, and groin areas ... and tech said doc would call, but he didn't find anything so serious that Steve couldn't go home.

Our oncologist is pretty sure there is a clot, but not a bad one. We are still waiting for the radiology to report, and the ultrasound was late on Friday. (Darn late Friday doc appointments, but they worked us in.) Said usually they don't treat one in the ankle, but he would probably start Lovenox, because clots are so prevelent in PC patients.

We talked about quality of life. (Sucks right now.) Rechecked lab today. Stopped chemo (which he couldn't have had anyway due to his lab. Treat the foot/ankle. Probably ascites is causing the problems with pain after eating. Use Reglan.. (probably some gastroparesis).. treat the anemia... see the therapist on Monday and talk about quitting chemo for good, and see him again next Friday.

When I asked, he said it is never to early to do hospice. That there are lots of studies that show quality of life is much better and even some that show folks life longer. Hospice can help with the symptoms, and get things back on track. You can always quit and resume chemo if you get to feeling better. He told us that he had a patient with liver cancer - who didn't respond to chemo and chose hospice. Is still doing well, 8 months later. Docs goal now is to treat the leg and anemia and get him to feeling better. Will talk about hospice more next week.

He was calm, reassuring, honest, answered questions, supportive of whatever decision we wanted to make and told us to take our time... Steve is much better emotionally, even though he still feels terrible after being up and around all day, and waiting for the urgent ultrasound. Re the severe anemia, Steve says 'I told you something was really wrong'...

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