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Pancreas Cancer

Val was posted 09/01/2012 06:05 pm by Shelley in Ar
E-mail Address: sailor.shelley@yahoo.com

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Val, Everyone here is so awesome to be so open to provide support, information and resources... My family has just started this journey as well and it is so extremely difficult. If you ever need someone to talk to please let me know... MarkB is always willing to answer my questions and I have constantly posted to him because he goes to MDA and uses the same department as we do... Mark was even so kind as to come to the hospital and visit with me yesterday while my dad was having a procedure which is a huge deal considering the crazy traffic getting to MDA in Houston... You know PC is diagnosed by stages I-IV.. will I have decided that I am in Caregiver stage I now... This is the caregiver stage I define as desperate, constant emotional bipolarism, I go from anger to grief and tears in seconds, I am consumed with researching, I do not eat (i have lost 25lbs since july 6 when this was first assumed to be the diagnosis for my dad) or do I sleep very often... I question every decision we make for my dads care, I question if any of the doctors are being aggressive enough, I feel everything is urgent... and I feel like none of the doctors ever understand what I am telling them about problems we are having... It is all very overwhelming... Now I have no idea if I will ever move to what I can coin caregiver stage II... which I pray gives a decreased level of feeling frantic and like everything is an emergency where I can be less consumed by the frantic need for knowledge and more towards enjoying the days we have!!! I know right were you are feeling like this is life or death and every day that goes by with no intervention is decreasing the chance of survival for your loved one... Praying for you and your husband...

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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