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Pancreas Cancer

Val my suggestion was posted 08/31/2012 09:42 am by Stephen In CA
E-mail Address: robradon@aol.com

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Val,

If I was in your position, I would do exactly what your doing. Which is going to Stanford, where you would get your pathology report and get the findings back from the Tumor Board.

However, I would see an Oncologist at the Stanford. Because they are teaching University hospital that has great access to trials and some of the best pancreatic cancer oncologist. They are part of the Stand Up to Cancer program and are doing clinical research on Pancreatic Cancer. They also get funding for projects from PANCAN. But, then you have to go back to Stanford at least every three months for scans and tumor markers to be drawn and processed, which would mean you have to spend a week in San Jose.

Like you I had choice to go anywhere in the United States or Canada for treatment. However, I decided it was better for my wife to have me local where she'd have the support she need to get her through this, also it was better for me, as well.

The Oncologist from Stanford can work directly with your local oncologist. If this is not something you want then I have included my email address email send me your contact info and I will hook you up in Long Beach. If you need a place to stay you can stay with us, that is not an issue.

Val as your husband continues on this journey you will need the following team members. - GI Doctor that is familiar with PC and the surgeries that are involved with this disease. Oncologist - someone that is understanding and compassionate and one that is aggressive, but at the same time believes in the patients quality of life, Oncology Surgeon - someone that is available to answer question and does not brush you off and is familiar with PC.

I know my Oncologist would want to see your husband at least once every 3 month to see how is doing and he can hook you up with the same team I have, also he would most likely suggest that you have the scans at local hospital where I live. They process the scans within 48hrs or sooner and he has the reports, which means you have to stay over night in Long Beach. The hospital can make CD immediately and then I walk them across to his office, that is how close he is to the hospital.

Believe, me I am lucky to still be here, however I have an excellent team with good resources and are aggressive yet compassionate. I will state for the record I am one of those like some of us here the Drs. shake their heads wonder, why?

Also Val, just to let you know I had chemo this week so I may be on and off the board as I sleep and recover.

G-D's Blessing to you and your Husband. Either I will call you back or Robin my wife will. I am think you, you should both have talk as well.

Your husband has the easy job staying alive long enough to become NED. You have the toughest job in the world that does not come with a manual that of caregiver and your his spouse so your emotionally vested in his best interest.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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