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Pancreas Cancer

Chemo Update was posted 08/29/2012 12:49 pm by Stephen In CA
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My fellow warriors, thought it was time update you, while I can still think straight and not sleep the days away.

FolFirinox - is not a fun chemo, though it is tolerable for me. I still get fatigue quite easily, however the Ritalin seems to help when I take.

I am putting on weight much thanks to Robin, who is making sure I do. I am up 7lbs from the last weigh-in. I feel like boxer when I go to the Oncologist with all this weigh-in stuff.

So I had chemo yesterday - today I still on my steroid buzz, lots of energy, however I am getting tingling in the finger tips, sensitivity to cold has started, and my jaw hurts at the being when I chew food. All in all still not a real big issue. One thing I have noticed compare to GTX and GAX this is the mother of all get your behind out of the chair and run like the dickens to the bathroom. It is crap shoot if you get there in the nick of time (PUN intend).

Other than that Life is Good, I get the CA19-9 taken on Friday and then it is back to the number games. I tend to ignore the TMs like I tell yah, it is more how I feel, and right now things are good. Life is Good.

I have 12 more of these treatments left every other week. Then it is back to GAX inter-peritoneal treatment for a follow-up, depends if required actually, if the FolFirinox can kill the free floaters in the peritoneal cavity then I am done and NED. Barring any spread, from these nasty little free floaters.

G-D's Blessing be on you today my fellow Warriors and everyday. Caregivers you may not hear it often enough, but we love you for everything you do for us and so much more. Thank you.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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