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We finally got Aaron set up with a local onc down here so he doesnt have to travel to Hopkins for treatments. He's been on GTX since October and the scan in Dec showed the tumors shrinking nicely. His CA19 was down to about 140 at Hopkins.
Local Oncologist advises he wants to take a baseline CA-19 from Aaron. He told us in advance that this lab is run a bit differently than Hopkins and not to freak out if the number is different, he expects it to be different. It was 570.
Dr is not concerned and basially reiterated that his method is a bit different and the numbers never match other dr's CA-19s. He said a trend and the upcoming scans are more important. He stressed not to worry..
But 570 and 140 is a BIG difference!! Has anyone heard of such a fluctuation between CA-19 labs taken at different hospitals?
I'm trying to look at the positive here- Aaron is still gaining weight and
feels good. And he still gets hunger sensations and eats normally. I hope any
additional bump in the CA was from his stomach inflammation and kidney
stones. Please, any input is greatly appreciated!
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