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Pancreas Cancer

2 years was posted 05/29/2011 02:25 pm by Jonathan
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Today is the 2 year anniversary of my Whipple operation, made even more special by the fact that is was the second attempt. My scans have all been good and my CA19-9 has stayed in the 4-5 range since surgery. I'm reminded of a year ago today when I posted about the one year mark, what I remember is that it seemed to a more solemn day on the board due to the news that we had lost a member or two and some others were having difficulties. A year later we are in that same place, while I am so deeply grateful that I've been able to survive and improve for these last 2 years I absolutely hate what this cancer does to some people and those who love and care for them.

I feel unbelievably fortunate when I consider the many variables that could have resulted in a different path for me, tumor placement & size, the timing of the symptoms, the persistence of my primary care physician, finding the right surgeon, having good insurance, how my body responded to treatments and so many more 'things'. As much as I try to just be accepting and grateful I still wonder, Why me? Why do I get this 'extra time' when so many others don't. A partial answer may have come to me recently when I was contacted by a PANCAN rep and asked if I would be willing to go to Washington D.C. for Advocacy Day June 14th. I often feel as I read this board that I can't find the words to comfort those who are struggling or have lost someone, I want to help but seem to be paralyzed by the sadness of it all. Maybe it hits too close to home. But I do believe in hope for a better future, for more positive outcomes for those who are lead to this board in the coming years. I want to work toward a goal of more survivors and less sadness. I don't want to ever take my good fortune for granted.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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