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And the vast majority of us don't participate in trials. It is < 5% of cancer patients that participate.
Somehow I think that % might be higher among those that participate on this board. We are an active group, looking for all options.
My mom was totally against joining a trial from the beginning. They weren't well explained to her, she felt like she was being pushed in that direction because her doctors had 'given up' on her, the doctors were new/not very friendly/more interested in her trial then her, and she didn't like the idea that she was going to be 'experimented on'. But close to the end of her treatments she did consider a trial when no other options were offered. Unfortunately, the doctors running the trials were not clearly thinking about her best interest at that time. She shouldn't have been in a trial, at that point.
So I am torn. My mom's fears were reasonable. And yet we knew deep down that if there was a chance the trial could help, maybe we should try. And honestly, the best way for a field to move forward is with trials.
So what did you do? Why didn't you enter a trial? How can we help the field move forward?
We support Johns Hopkins, donate to Lustgarten, but ultimately we have to use
the results of basic science to help us design clinical trials to see if it
helps. But if we don't join the trials, then we're kinda stuck.
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