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Pancreas Cancerreply - anonymous was posted 12/31/2010 05:23 pm by Shelley
I so hear you! We have had some of the supposedly best doctors be the most
heartless and rude with us including the great and mighty Mayo Clinic (right
after diagnosis they told us there was NOTHING they could do, they wouldn't
even offer up a chemo plan. All they said was come back when the cancer has
metastasized and maybe we'll have a trial you can get into. I wonder if
they would have said that to the Queen of England? or the President of the
U.S. or George Clooney for that matter - they told us that they were the
'experts' and it didn't matter what other doctors told us, BUT....if we ever
got to the point of being able to have surgery, to be sure to come back to
them - yeah right).
We then went to an appt. with Dr. Von Hoff - (we specifically went there
because we had read so much about how inspiring and hopeful Dr. Von Hoff was
and at that point my husband really, really needed to have someone believe
that he could live for awhile) - that appt. got screwed up and we saw an
associate of Von Hoff's who also questioned why we bothered to travel to
Arizona and directed us to a clinical trial at Mayo in Rochester, which
turned out to be closed when we checked into it. Those 2 days, a year and
half ago, were the worst days of our lives (besides the day of the diagnosis,
Well, turns out that 19 months later we're still here despite both of them.
It is disheartening, however, that people that are already in despair have to
endure even more heartache - I hope they don't think they're doing us a
favor. The toll that these kind of attitudes have on the people struggling
every day with this dreadful disease is devastating.
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