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Pancreas Cancer

Yes was posted 12/31/2010 02:25 am by Donna C in FL/now AZ
E-mail Address: dmcrane1@gmail.com

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Adrian has been stage IV since August 2009 with mets to the lungs and bone mets. He was on Gemzar and Oxaliplatin plus Zometa (for the bone mets); CA19-9 doubled; bone mets showed signs of necrosis. Then he was put on Tarceva and Zometa (I think the Tarceva shouldn't have been given because it is a targeted drug for people with a specific genetic marker and I don't know if Adrian was tested for that marker. People who have it get a rash, and the supposition that we've had on this board for a long time is that if you get the Tarceva rash, the drug is working. Anyway, his CA19-9 doubled on Tarceva and Zometa; bone mets further diminished; lung mets stayed. Then he was put on Gemzar and Taxotere, but not Xeloda because the doctor thought it would be too hard on him. CA19-9 doubled; bone mets still going away and not active; lung mets still there. Currently on Gemzar/Abraxene/Cisplatin + Zometa and we had finally seen some reduction in CA19-9, when he had to miss several chemos for hospitalization for a lung pleurodesis and then had one chemo, and missed the next month because of blood clots. He is back on the Gem/Abraxene/Cisplatin + Zometa and just had his 5th infusion today. Don't have the new CA19-9 numbers yet, but the blood test a week after his 3rd infusion showed his numbers had dropped 12,000+ points, so I'm hoping we see continued drop in the number when I find out the results next week. He has always been very reactive to the CA19-9 tests and they've pretty much been spot on with how he was doing so I trust them. After two hospitalizations he was very weak and got down to 101.5 lbs, even with eating he wasn't gaining weight. When his numbers started dropping he started putting weight on although he wasn't really eating more food and is now back up to about 108 lbs. Still scarily thin, but feels much better, sleeping better, and eating well. So this is the 4th chemo he's been on. If this current chemo stops working, we have already spoken with Dr. Van Hoff about other possible drug combos, so you have plenty of options. Good luck. When you feel good do your best to eat high calories and stay hydrated.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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