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Pancreas Cancer

Hugs was posted 11/01/2010 07:23 am by DD
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I could've written this so many times 'At this point, his quality of life is not good. I know that, he knows that, we all know that. Why would we want to make him live longer like this?'

I guess it's fine to look through clinical trials, FIL had a vaccine one with no side effects (then again, quite possible he got the placebo). At this point, instead of focusing on clinical trials, please consider what could make his quality of life better.

How is pain management? How are his symptoms? My FIL was in a lot of pain, had ascites (tons of fluid in abdominal area), and lymphedema (severely swollen arms/legs). FIL's pain was best managed by oxycodone and fentanyl patches. Ascites were drained at the hospital. Lymphedema was treated by massage/pressure wraps done by a specialist.

Anyway those issues should be immediately addressed. If you find a clinical trial that would have few harmful side effects and may actually help, that's wonderful too. I'm very skeptical though because I wouldn't want him to be treated like a 'trial specimen' because researchers are always looking for someone to try out their treatment on...I'd want to know how the treatment would impact his life (is it placebo controlled? Then he's going through all the trouble for nothing - what are side effects? how often would he have to go to the hospital or visit the doctor?) and if it would diminish his quality of life then I don't know if it's worth it.

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