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Pancreas Cancer

Re: Question about Ipilimumab was posted 08/31/2010 10:56 pm by Lauren
E-mail Address: laurenthews@comcast.net

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Tracy, My husband was diagnosed with Stage III PC in early March of this year and had the whipple on March 15, 2010. He had 3 months of Gemzar and was then supposed to start radiation in early June, however, he had developed an abcess in his abdomin so they ordered a CT scan. We had to go get the abcess removed and came to find that the CT scan showed metastisis to his liver. So while he was healing from the abcess, i started researching other options for him rather than more chemo. I came across the JHH Ipilimumab trial and had our onco write a referral to them for us. We got a document back from them regarding this trial 'Research Participant Informed Consent and Authorization Form' which describes the trial in much more detail. I can send it to you if you'd like to email me. After a lot of reading and consideration I went ahead and made an appt and took my husband out there to meet with the Trial Doctor, Dung Le, on August 9. As it turned out she (the doc) said that my husband was not a good candidate for that trial due to how fast his cancer was growing and his current health condition which isn't great. The study takes 24 weeks and she felt that the drugs (ipilimumab) would only cause high levels of toxicity for him and lead to other problems. She recommended we continue with chemo therapy.

You will need to send all of the medical records, pathology slides, etc. before your appointment. Note that when I finally called to make the appointment, the date they gave us was 3 weeks out. I think they said they only see a certain number of new patients a week. You have to go in person to be evaluated for the trial and as I found out there is potential to be turned down. They are only accepting 30 patients into this trial. I also have a list of questions, things to consider while you are evaluating whether or not to follow up on the trial. Again, if you email me, I'll be happy to send you everything I've got.

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