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Hi Dave was posted 07/15/2010 10:47 pm by Carole
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Hi, I am so sorry your loved one has to go through this. My Mom passed from this at age 76 in 2002. It is so frustrating because this is a very rare cancer. I would get a second opinion because some doctors recommend gemzer or xeloda because they are not too invasive and may help with quality of life. The pancreatic cancer board accessed using the link on top can be helpful b/c many issues are the same. I can say that over the past 8 years, I have communicated with and stayed active on board with about 8 to 12 patients with GBC who lived longer than a year rather than the typical 3 to 4 month estimates. I can tell you that the right doctors can control the pain and patients seem to have a relatively good quality of life. Use the search optuion about that can retireve messages about 'chemotherapy,' etc. The archived posts provide a wealth of information. Again, the folks on the pancreatic board are very supportive and knowledgeable. My Mom passed of sepsis rather than GBC. Please post on the pancreatic board because it is a family and they sometimes understand when no one else does. I am so sorry you and your loved one has found yourselves here, but concentrate on making memories. Good luck and God bless on your journey. Let me know if there is anything I can do to help. Sincerely, Carole

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