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Pancreas Cancer

Folfox is pretty typical was posted 04/02/2010 08:53 pm by Donna C in FL
E-mail Address: dmcrane1@gmail.com

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Adrian is currently on Folfox, which is a combo-cocktail of 5FU-Oxaliplatin and Leucovorin (since he has bone mets he is also getting Zometa infusions once a month). Previous chemo was Gemcitibine & Avastin and Radiation before the Whipple, and then he was cancer free for 2 years post-Whipple when mets showed up in lung, ribs, pelvic bone. Oxaliplatin is usually given in combo with other drugs and is a pretty standard treatment for metatasis, I think, so I'd worry about the fact that your doctor thinks it is experimental because he's frighteningly misinformed. Adrian gets treatment every other week. Oxaliplatin and Leucovorin and Aloxi(anti-nausea) plus calcium and magnesium infusions given over about 5 or 6 hours...and every other time he also gets Zometa. Then he leaves wearing a pump for 46 hours that infuses him with 5FU. He has a permanent port in for this treatment. He is going to have another treatment next week, which will be his fourth set of infusions. So far he has had some nausea until they got him to alternate taking Zofran and Phenergan which works very well for him. He is very tired the 5 or so days post-infusion, then it gradually gets better. He has been eating well, and has some cold sensitivity but not extreme yet. It pretty much goes away by 9 or 10 days post infusion, so the last 4 or so days before the next infusion he drinks malts, cold drinks, and an occasional beer with no problem. His hands haven't given him much problem, but he does comment that he can definitely feel the little 'cold' shock. He says when he drinks something too cold, it feels like he won't be swallow, like the back of his throat is paralyzed for a few seconds, but it's just a weird feeling and he is able to swallow after all. Unfortunately we don't have any idea how it's working for him yet. He's getting the chemo locally, and we go back to M D Anderson on May 5th for follow up and re-staging if necessary. I have asked them to do a CA19-9 when we go in next week, so maybe I'll have something else to say about how it is working for him after that.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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