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Pancreas Cancer

kc's dilema was posted 01/01/2010 03:54 pm by frannie
E-mail Address: fran80borderstreet@gmail.com

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I went through a similiar experience. I complained about symptons for a year. Finally got my pc doc to order blood tests, some came back with phophate tests off, nothing conclusive. I still felt sick and could identify the discomfort in my pancreas. My doc said do you evet know where your pancreas is, most people don't. Then she ordered ultra sound. When having ultrasound, the pressure made the area extremely painfull and ult, even tho I screamed with pain..ultra sound came back, they could see no problem. Pain got worse. I insisted 'Look, something is going on in there' Then they ordered radial CT scan . Well, we see something don't know what it is. I had to push to get to see a gastro who did the ERCP himself..Bingo. They saw something. This took 6 months of perserverance. Then I began the search for a surgeon who would perform the whipple. I was operable but had too many risk factors to contemplate major surgery. The surgeons were brutally outspoken (I don't want to use the word honest) because mixed in with the honesty, they are conflicted with unsure results, and risk benefit analysis. Isn't that my decision? It's a tough surgery and a lot plays into it.. is it worth it?Can she get through it, what are her chances of recovery. I really had to convince the surgeon I had the grit to prepare myself and work hard at recovery.The first 4 opted not to do it, with varying reasons like 'I don't think I can get you through the surgery.' Why would I want him to do it? Another said 'I only perform those that I think can make it, I'm so booked up' It's water under the bridge, but I found the right surgeon and he tackled my surgery and the results are self-evident, I'm here to tell you to persevere. Your symptons may or may not be pc, but they are definately something and you need someone who will case manage your care. If I ever hear another Dr. say 'it's in your head' (he can think it but he better not say it) I will sock him or her. The suggestion to keep files and notes and take it with you is on target. And most docs realize you mean business and you are in charge of your health.and keep written goals for each visit including sentences that say, I would like to have my test results by such and such a date, I would like a hard copy of test results sent to me immedialtely, please. I would like my appointments in a timely way, not 6 months down the road or I will go somplace else. If they don't care for those suggestions don't waste your time with them. You are a number with most of them, but you are important to yourself and you need to be in the drivers seat, do not let the road of our health system be your driver. This is tough love but this is a tough problem. You need to get this resolved soon whether it is pc or not. Begin today , do not let a day go by where you are not addressing a way to get it solved. I will be checking in and praying for your courage and strength to get your solution. Frannie the fighter

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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