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Pancreas Cancer

Where should we go? was posted 11/30/2009 10:50 am by Shelley
E-mail Address: pelicanpike@yahoo.com

Message Text
My husband has stage IV PC - we have the option to see Dr. Daniel Laheru at John Hopkins regarding participating in a clinical trial. (We just found out about this last night). Last week, we had records sent to Dr. Von Hoff at Scottsdale Health Care in order to schedule a consultation along with tumor profiling. Now we don't know which way to go! My hubby is 49, in good health (except for PC, of course), was dx in June with stage III PC (tail); initially they thought they could operate if the tumor shrank a small amount so tried Gemcitabine + Cisplatin (no change), than tried IMRT with Xeloda for 5 weeks. There is now 1 liver met and possible mets to bone; I imagine surgery is out of the question at this point. I feel like we've made two poor treatment decisions thus far and we really want to see the 'right' doctor/clinic before we start a 3rd option. Any opinions, help would be so appreciated! I should add that having a personable, inspiring doctor would mean the world as I really feel my husband could use a little dose of hope versus clinical analysis. Hope that makes sense. does anyone have experience with Dr. Von Hoff versus Dr. Laheru or JHH versus Scottsdale/Virginia Piper/TGen in Arizona? Thanks!

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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